Presentation Title

Streamlining recruitment practices and providing equal access to research opportunities: An in-depth look at the benefits and challenges of implementing a Permission to Contact platform

Start Date

22-11-2018 1:45 PM

End Date

22-11-2018 2:45 PM

Abstract

Are you struggling to support participant recruitment at your institution? Are you concerned that not all patients are provided equal access to participate in research opportunities that may benefit their health and quality of life? If your answer is yes, you may be interested in learning about Permission to Contact platforms.

Participant recruitment for clinical research is becoming increasingly challenging in academic and clinical settings and many organizations are seeking strategies to facilitate and streamline recruitment practices. The implementation of a Permission to Contact (PTC) Platform has the potential to overcome these challenges and ensure all patients are provided with equal access to research opportunities. The PTC platform asks patients in academic health care setting to give consent to be contacted for future research opportunities that may be relevant to them. Implementing such a platform can enable completion of research studies, especially for studies requiring a large number of participants. Some organizations across Canada and internationally have begun to develop and implement PTC platforms leveraging either an opt in or opt out model of consent. During this workshop, attendees will be provided with: 1) a national and international overview of existing PTC platforms; 2) a description of N2's Permission to Contact toolkit; 3) learnings from two Ontario Academic Health Science Centres, Holland Bloorview Kids Rehabilitation Hospital and Baycrest; and 4) a review of the legal and privacy implications associated with PTC platforms.

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Nov 22nd, 1:45 PM Nov 22nd, 2:45 PM

Streamlining recruitment practices and providing equal access to research opportunities: An in-depth look at the benefits and challenges of implementing a Permission to Contact platform

Are you struggling to support participant recruitment at your institution? Are you concerned that not all patients are provided equal access to participate in research opportunities that may benefit their health and quality of life? If your answer is yes, you may be interested in learning about Permission to Contact platforms.

Participant recruitment for clinical research is becoming increasingly challenging in academic and clinical settings and many organizations are seeking strategies to facilitate and streamline recruitment practices. The implementation of a Permission to Contact (PTC) Platform has the potential to overcome these challenges and ensure all patients are provided with equal access to research opportunities. The PTC platform asks patients in academic health care setting to give consent to be contacted for future research opportunities that may be relevant to them. Implementing such a platform can enable completion of research studies, especially for studies requiring a large number of participants. Some organizations across Canada and internationally have begun to develop and implement PTC platforms leveraging either an opt in or opt out model of consent. During this workshop, attendees will be provided with: 1) a national and international overview of existing PTC platforms; 2) a description of N2's Permission to Contact toolkit; 3) learnings from two Ontario Academic Health Science Centres, Holland Bloorview Kids Rehabilitation Hospital and Baycrest; and 4) a review of the legal and privacy implications associated with PTC platforms.