Enhancing Research Impact Through Inclusive Patient Engagement: Lessons from the PEIR-IDEAS Project

Presenter Information

Ashley Redding, Public Health Sciences, Henry Ford Health, Detroit, MI, USA
Leah Copeland, Public Health Sciences, Henry Ford Health, Detroit, MI, USA
Dana Murphy, Public Health Sciences, Henry Ford Health, Detroit, MI, USA
Asraa Alhawli, Arab Community Center for Economic and Social Services, Dearborn, MI, USA
Maureen Bennett, Care Experience, Henry Ford Health, Detroit, MI, USA
Martina Caldwell, Department of Emergency Medicine, Henry Ford Health, Detroit, MI, USA
Karen Clemmons-Lloyd, Patient Advisor Program, Patient Engaged Research Center, Henry Ford Health, Detroit, MI, USA
Kimberly Cummings, Patient Advisor Program, Patient Engaged Research Center, Henry Ford Health, Detroit, MI, USA
John Doyle, Patient Advisor Program, Patient Engaged Research Center, Henry Ford Health, Detroit, MI, USA
Sandy Kesavan, Patient Advisor Program, Patient Engaged Research Center, Henry Ford Health, Detroit, MI, USA
Karen Kippen, Public Health Sciences, Henry Ford Health, Detroit, MI, USA
VeRonica Mitchell, Patient Advisor Program, Patient Engaged Research Center, Henry Ford Health, Detroit, MI, USA
Angela Murphy, Care Experience, Henry Ford Health, Detroit, MI, USA
Deyal Riley, Patient Advisor Program, Patient Engaged Research Center, Henry Ford Health, Detroit, MI, USA
Linda Stechison, Patient Advisor Program, Patient Engaged Research Center, Henry Ford Health, Detroit, MI, USA
Sara Santarossa, Public Health Sciences, Henry Ford Health, Detroit, MI, USA; Department of Obstetrics, Gynecology and Reproductive Biology, College of Human Medicine, Michigan State University, East Lansing, MI USA

Author ORCID Identifier

0000000330384

Location

Caesars Windsor Convention Centre, Room: SATURNI

Event Website

https://wesparkconference.com/

Start Date

22-3-2025 3:15 PM

End Date

22-3-2025 4:15 PM

Description

Background: Meaningfully engaging patients in research ensures studies are aligned with patient-centered priorities and enhances the real-world impact of findings. The Patient Engaged Research Center at Henry Ford Health specializes in integrating the patient voice into the research process. Objectives: We will demonstrate effective patient engagement at all research stages with the example of our PCORI-funded project (SOE-2022C2-28911), Patient-Engaged Validation of the PEIR Survey Enhanced by Inclusion, Diversity, Equity, Acceptance and Safety (PEIR-IDEAS) and its stakeholder team, the Science of EnAgement Team (SEAT). Methods: The SEAT (N = 17) consists of researchers, community members, a physician, health system staff who engage patients in their work, and patients, and meets monthly. We have broken the research process down into 5 steps and meaningfully engaged the SEAT along the way. Step 1. Refining the research question – literature review; Step 2. Selecting the study approach – creating an engagement plan; Step 3. Designing the study and collecting data – choosing recruitment strategies, conducting focus groups; Step 4. Analyzing data – analysis of focus group data, return of aggregate results plan; Step 5. Reporting findings – co-creating a dissemination plan, co-authoring publications and abstracts. Results/Future Applications: Patient engagement in our study led to a myriad of successes, such as including diverse voices into the study and applying new lenses to data analysis. The project resulted in PEIR-IDEAS, a validated scale to measure patient engagement in research. This tool can be disseminated broadly and used to assess and improve patient-centered initiatives.

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Mar 22nd, 3:15 PM Mar 22nd, 4:15 PM

Enhancing Research Impact Through Inclusive Patient Engagement: Lessons from the PEIR-IDEAS Project

Caesars Windsor Convention Centre, Room: SATURNI

Background: Meaningfully engaging patients in research ensures studies are aligned with patient-centered priorities and enhances the real-world impact of findings. The Patient Engaged Research Center at Henry Ford Health specializes in integrating the patient voice into the research process. Objectives: We will demonstrate effective patient engagement at all research stages with the example of our PCORI-funded project (SOE-2022C2-28911), Patient-Engaged Validation of the PEIR Survey Enhanced by Inclusion, Diversity, Equity, Acceptance and Safety (PEIR-IDEAS) and its stakeholder team, the Science of EnAgement Team (SEAT). Methods: The SEAT (N = 17) consists of researchers, community members, a physician, health system staff who engage patients in their work, and patients, and meets monthly. We have broken the research process down into 5 steps and meaningfully engaged the SEAT along the way. Step 1. Refining the research question – literature review; Step 2. Selecting the study approach – creating an engagement plan; Step 3. Designing the study and collecting data – choosing recruitment strategies, conducting focus groups; Step 4. Analyzing data – analysis of focus group data, return of aggregate results plan; Step 5. Reporting findings – co-creating a dissemination plan, co-authoring publications and abstracts. Results/Future Applications: Patient engagement in our study led to a myriad of successes, such as including diverse voices into the study and applying new lenses to data analysis. The project resulted in PEIR-IDEAS, a validated scale to measure patient engagement in research. This tool can be disseminated broadly and used to assess and improve patient-centered initiatives.

https://scholar.uwindsor.ca/we-spark-conference/2025/oralpresentations/20